Ellie had a very special visitor today. Her brother! We took a walk down to the child life center and played some games and then to the family room and played some cards. Its been kind of a quiet lazy day. Ellie’s eye has been really bugging her tonight. We will be seeing an ophthalmologist tomorrow and they will be doing another more in depth test on her ear tomorrow. They where weaning her off steroids but because of the loss of hearing they are thinking that there is some swelling somewhere so they have upped her steroids again. Ellie has a new ointment for her eye. I hope I can keep up with all these meds when we get home. Which we are hoping for tomorrow but will not be surprised if we are here till Tuesday. If tomorrow is the day this might be the last night I get to see this High Rise view but still looking forward to the Lemont view.
Ellie did get to facetime with all her cousins today including Lucas from California. He facetimed from the beach. Ellie was so surprised because its so cold here how can it be warm enough there to go to the beach. Ellie also facetimed with another group of friends. She really enjoyed staying in touch. She feels like she is missing out on so much at school. I was able to convince her to sing to the two nurses during shift change and they where blown away. They said they cannot imagine how good she sings once she heals. So happy she sang for them.
Tomorrow is going to be a work hard kind of day and I am sure I will have a little more exciting updates for you.
A mother with a battle ahead of her.