Today was a rough day at physical therapy with Ellie. My mom was going to take her but then she had to work at a school today. So she sent Papa with me hoping this would help. Ellie through a huge fit during physical therapy announcing that she was mad at me and wanted a new family. I was the worst person for bringing her there. This all stemmed from having to take her shoes off and stand on a foam thing. Papa was shocked by her behavior he has yet to see it. But it really drained me physically. Unfortunately Ellie tells me she wants a new family almost daily because she is upset about everything going on. It saddens me but it is my reality these days.
Her Occupational therapy went much better there was no yelling a little defiance but we can handle that. We discussed Ellie’s SI versus Jakes Sensory Integration. Jake is a Seeker (he needs input and extra stimuli such as tight hugs ex.) Ellie is an Avoider (She does not want to hug or touch things with her palms & feet. She flips out when she has to handle different textures). I guess god had a plan when he gave me Jake with SI a few years back. He was preparing me for my journey with Ellie through her SI problems. I’m glad I understand it better because of Jake. Not happy that either of my children has this difficult problem but it is what it is. As my Step-dad said I have a ying and a yang they balance each other out. I love them both with all my heart.
She did pretty well for the tutor today or should I say homeschooling. Every time I call it tutoring she yells “mom I don’t tut, so stop saying I have a tutor” at first I tried to explain to her what it meant but she would have nothing of it so we just call it homeschooling now. It’s easier that way and I am choosing my battles these days and that’s not one I want to choose.
Tomorrow is a bright and early day for us as we head downtown for Ellie’s 3rd 6 hour Chemo treatment. Some of those hours she is just getting hydration through the port. Another day of fighting this horrible, thing that has taken over my child. Wish us luck. Please check back tomorrow night’s blog, I have some important things to talk about.
P.S. Jake is being such a good boy these days. I just got back from taking him to my sisters for a sleep over. I am so proud of him stepping up and being almost like the big brother even though he is Ellie’s little brother.
A mother with a battle ahead of her.