We where released on Tuesday evening. Ellie will continue meds at home. Once we got word we where able to get home Ellie perked up a little and even started eating more. When we got home it was such a relief to see her with some energy. Unfortunately, it didn’t continue through to today. She spent most of the day sleeping. I was able to get her up to take a bath and go see my Grandma in the Rehabilitation center. She also had tutoring today and a massage but besides during these times Ellie slept most of the day. One of my friends took me to get my nails done and gave me a much needed break. Thank you to my mom and sister for being Ellie while I was getting this break today. Thank you Kristy Roames for massaging Ellie’s neck for me it really seemed to help again. Ellie still has neck pain but her headaches seem to have gone away which is awesome. They are thinking it’s a chemical imbalance from the surgery. Its hard to keep track of her medication because she is on a strict schedule with 4 different medications. Luckily Dave put together a spreadsheet to help keep track. But for now we are super happy to be home. We will be speaking with the Doctors next Wednesday for the exact plan with Chemotherapy and Radiation. Once again the wait is killing me I cannot wait to hear the doctors tell us we can go on this much needed vacation that has been planned for over 6 months now. Only time will tell.
I cannot thank everyone enough for keeping us fed and in your prayers. Also for the amazing support with the green ribbons, green lights, and green bracelets. Every time I drive around town and see the love and support for Ellie it makes me smile. I have attached the map showing all the places Ellie Bracelets are right now. I am hoping that we can fill United States that would be amazing. Thank you April Rita and Aubree Flaws for heading up this huge task. Also thank you to all the businesses, Schools, and people helping sell bracelets.
Also Lemont High School Contacted me and they will be holding a Talent Show on March 15th and will be donating 50% of the proceeds to Ellie for medical expenses. Also I am working on getting Ellie to perform. I included the flyer for the event below.
A mother with a battle ahead of her.