Yesterday was a lay around kind of day. Ellie was really tired most of the day. My MS is acting up again so its not easy to write and type right now so I decided to just make one post for Friday and Saturday. Also because it was a lay around kind of couple of days there wasn’t much of an update.
We are still working hard on therapy at home when Ellie is up for it. We are hoping to start school bound tutoring this upcoming week. We have so many appointments coming up this week with ENT, Ophthalmology, and Hearing. And my family has a little pick me up surprise for Ellie after one of her long days at the hospital.
I have not really left the house at all. I’m afraid of people asking how Ellie is doing. I don’t have a great answer and its been a struggle. I just want to be able to give some good news. I know my family is struggling with that question also. Sometimes not even bringing it up is the best way to handle it. Or just a simple say “Ellie is in our prayers.” I started this blog so that we don’t have to answer the questions over and over on a daily basis. We are living it every minute of every day and once in a while it would be nice to just not talk about it. I was suppose to go to my nephews play today and I cancelled last minute because I just didn’t know how to face people yet. I know I will have to get myself out and about soon to set an example for Ellie but for now I am hibernating.
Last night Ellie was excited that her 2nd Cousin or what she calls her BFC “best friend cousin” came to visit. We really enjoyed our time with my Cousins family as it brought joy to Ellie, and the rest of us also. Ellie was exhausted again by 9pm but at least she was joking and having fun with other kids for a bit. Love that my Kids and my cousin’s kids are such good friends. Oh yeah and our husbands get along great too. I am very blessed with an amazing family.
Today we had a visit from Ellie’s Great Grandma, my Aunt Kyle, & Uncle Butch. They brought us lunch and hung out. I really enjoyed spending time with my Grandma, my Aunt, and Uncle. We just talked about all sorts of stuff none Ellie related and I needed that. It was a great day of relaxation for Ellie. Tonight I was cuddling with Ellie and I said “I love you, Ellie” and her response is “Yeah I just wish life loved me too” Poor thing is so sick of taping her eye shut and doing therapy. I keep reminding her that she just had surgery and healing takes time. I have to remind myself of that often also as when you have any other surgery it takes a minimum of 6 weeks to heal and I would say brain surgery is a pretty intense surgery.
All and all Ellie is spending time sleeping and laying around a lot of but she is also healing. We have plans to stop by a friend’s house for a little bit for super bowl and then we will be watching the rest of the super bowl with the family.
Thank you so much from the bottom of my heart for everyone that has donated already to the Go Fund me page. Please take a moment and share it on Facebook for me. I hate begging but I feel so hopeless and this is the only thing I know what to do to keep our family afloat during these crazy medical expenses. The Link is: https://www.gofundme.com/qdurkx-ellie?utm_source=facebook&utm_medium=social&utm_campaign=fb_dn_cpgnsharemore_r&fbclid=IwAR0_mKyhcB4F4r5bnLVqPRwu6bGmuO0GqqEEXQN9RXvQdiyVtWG5sSymB4o
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Thank you for following our journey again. The love and support is incredible.
A mother with a battle ahead of her.