We had our Doctor appointment today. They really think it is a miracle that she is walking talking and thinking. The doctor just keeps on telling me this is amazing because the tumor was so large. We feel blessed in that aspect. Ellie does still have a droopy face and the doctors are stumped why that is because her surgery was on the Right side of the brain which controls the left side. The weakness is on the right and they say that is not from the surgery or the ischemia (minor stroke she had in the hospital). Anyhow that is the least of our worries.
It was very rough for her and I both today at the doctor. Rough for her because she had a melt down when they had to take off her shoes to measure her. The nurse kept on insisting until I started to cry then she decided to skip the whole process. I think she was melting down for two reasons, her Sensory of having bare feet on the ground and because it reminded her of the hospital. Rough for me, because they still are unsure of the course of treatment at this point. We are trying to schedule the MRI for the 23rd and then we will have a meeting with a group of doctors to determine what the next step is. They are calling this tumor a Grade 2/3 tumor. Some of the cells are 3 but for the most part it is a Grade 2. I was informed today that this tumor does in fact respond to Chemo. The most common treatment for this type of tumor is 6 weeks of Chemo and Radiation daily. Then after that 6 months of Chemo. But the Doctor did say it could be weeks, months, or years before they start any course of treatment due to the Radiation and chemicals are so damaging to the brain they do not want to over treat but defiantly they do not want to under treat either so they are just watching and waiting to see what the tumor does over the course of time. We will know a little more in two weeks. At this point this is a waiting game and I hate waiting.
What an incredibly emotional Day we have had. On a more positive note, Ellie started in home tutoring today. Ellie did so well she responded so well to the teacher that came. Dave and I were so proud to see her interacting with someone finally. The Doctor wants her to start back to school two hours a day and then we will have to wait and see how she does. We are looking forward to seeing everyone at the “Hearts and Love for Ellie Benefit” on Feb 11th at “This Must Be the Place”. Check out all the new auction and basket raffles I added today. I keep getting word of more and more items. It’s amazing the love and support we are getting from Family, Friends, & the community. Thank you again. We are so blessed to have so much love and support through the hardest time of our life.
I really thought when I was diagnosed with MS that was the hardest time of my life. I guess I was proven wrong. If you are a mother or father you would understand that something happening to your child is a thousand times worse than something happening to yourself. As of today we are just working towards getting better every day and playing the waiting game.
Make sure you check out all the auction items all the way down the list. I have added some throughout the entire page.
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A mother with a battle ahead of her.