Saturday, March 30th
We got into a room around 7am and my mom arrived shortly after this. I felt extremely happy and relieved to see my mom. Even a 41 year old still needs her mom. I was able to get some rest while my mom stayed up with Ellie. My mom went to Walmart to get some necessities for the week. It took 4 hours because the traffic is horrible here in Miami and also like my mom said Walmart on a Saturday in Miami is like Disney World on a Saturday. It is crazy how here in Miami its so different then the rest of Florida. Everyone here speaks Spanish and expects you to speak Spanish. If you don’t speak Spanish they look at you like you have two heads. The nurses and doctors also agree that Miami is a whole different world. We had a nice visit from my Uncle Terry for a few hours in the afternoon and my other Uncle Barry and Aunt Jerry came to visit us from the Keys but unfortunately it was a very short visit because Ellie’s pain escalated so fast and she was miserable. My mom and I laid down for the night to sleep and I guess in the middle of the night Ellie woke up and had a seizure again. This time for over an hour. She kept on moving her one side of her body like she was riding a bicycle and her arm kept coming up and hitting herself. In true fashion I slept through all of this. My mom was up with her. I think the comfort of having my mom here took over for me and my body knew it was time to rest.
Sunday March 31st
I woke up to a sedated Ellie and it scared me at first and then my mom explained about Ellie’s seizure and that they had to sedate her. Soon after this Ellie’s stats started to drop and they decided it was best to move her to ICU. We quickily packed up the room and headed to ICU. When we got down to ICU everything went very quickily. They had every kind of doctor, resdents, and nurses all hands where on deck. They asked us to leave the room because Ellie was unresponsive and they had to put a breathing tube in her. My mom and I where crying and so upset because it did not look good. I just wanted to talk to her again. My heart was breaking. I quickily contact Dave and told him he had to fly to Miami from Texas. He was suppose to drive the car back but the rest of the family was getting off the cruise boat today and they where driving the car back for us. The doctors checked her MRI and her ventricles looked stable which is the sign that her shunt is working and that wasn’t the problem. Next step was tap the shunt then to drop her shunt number and drain quickily and see if the pressure of the shunt changed after 30 minutes. When they went to tap the shunt again they saw that there was no difference in the pressure. At this point they said her shunt was malfunctioning and she had to go into surgery to remove the shunt. The plan was to take the shunt out and have an external drain placed so they could see the drainage of the fluid in the brain and monitor it. They don’t believe that the shunt is the only problem. We could tell this was just the beginning and we had a long road ahead. I just want god to bring my baby back to me. I just want to talk to her again.
I am so thankful for everyone that has wrapped there arms around my family. Thank you to everyone back home taking care of my house, my son, and all other logistics. This girl is a fighter and she will conquer this too.
A mother with a battle ahead of her.