My head is still spinning from a world wind of a week. I wanted to first apologize for not blogging sooner. We have
been thrown a few curve balls this past week on top of our busy schedule. We went downtown for Chemo on
Wednesday. I started the day off with a bang; I woke up 20 minutes past what time we were supposed to leave. I then had to wake Ellie up abruptly so there for I had a cranky unhappy child on my hands. After an hour and half drive into the city we were all a little on edge at that point. Ellie refused to work with the doctors and we were under a deadline because she had an Audiology Appointment in the afternoon. Needless to say it was a rough Chemotherapy day. Although it was rough,
I was grateful that she was able to get Chemotherapy because I was thinking her counts would be low because of some signs that pointed in that direction. Ellie had many rough points throughout the day but for me I had the
strangest rough point. You would think I would be crying as my child is being held down crying and screaming, no
mommy please, while she got her injection, but strangely enough I was not upset until I saw another little girl around Ellie’s age running down the hallway away from the doctor crying. At that point I just lost it. It was a very odd feeling, I guess between the rushing and the difficultly Ellie was giving us; this just put me over the edge. I just don't think it is fair that these kids childhoods have been stolen from them. Needless to say we made it through the day of Chemo including her Audiology appointment. She did get very sick through the night and into the next morning; I’m beginning to think this is our new norm for Chemo Days and Day after. Oh well we will roll with the punches. To top off our week, Dave has been working in Rockford, IL (for those none Illinois people, it’s around 2 hours away from our house without traffic), so its been a rough past week without him around.
Friday was a big day for the Cuiching Household. It was my best friend’s wedding and both kids were in the wedding along with myself. I was extremely nervous about it because the night before, Ellie was at her worst. I wasn’t sure how
Friday was going to go. But I must say I was extremely impressed with her. Actually I was impressed with both of my kids.
They both did a fantastic job. And as for my speech I know I have had many requests to post the video on here. Unfortunately my family didn’t take any video but once the videographer gets it back to the bride, I have a request in for a copy. For those of you that did not hear, I sang to the song don’t stop believing by Journey. I changed some of the lyrics to fit the bride and groom.
And no I am not singer but I do know how to make a fool out of myself. The best part was Jake was
a back up guitar player for me (he had a blow up guitar and did awesome). Definantly it was a hit with everyone. Lots of good times that night. Ellie fell asleep in the middle of dinner and was whisked away with my parent’s home but she had done the hard part already.
I spent most of my weekend recovering from the wedding. And then there was today. Ellie woke up with a fever
and complaining of a headache/dizziness. So I called the doctor and they told me to come down to the ER at
children’s to have her checked out. After a full day at the hospital mostly all the tests came back good, we are
still waiting on a few more tests but they released us around 2:00pm just late enough to be stuck in traffic on the way home. She was a little dehydrated but after some fluids she perked up really fast. The best part was by the time she got down to children’s (2 hour drive down) she no longer had a fever. But as I was told over and over in the ER today, better be safe. She is not a normal kid and there for we have to be over precautious with anything out of the ordinary. I was just glad to get out of there. Pretty much that sums up our past week in a nut shell. I have been ready for bed since 6pm today. So I am saying goodnight at this point, and praying for a better day tomorrow.
A mother with a battle ahead of her.